Lets see what has been happening since November of 2009. While in her cast from her Femur fracture Emily managed to teach herself how to crawl, and strangely enough we let her considering she was already in a spiker cast we kind of thought she couldn't do to much damage. Well she is definitely a trooper. She was then off and we haven't been able to slow her down ever since.
She fractured her right tibia again about 6 weeks ago now, after just over 6 months of being fracture free. It wasn't a bad fracture as far as fractures go, no displacement, and from the xrays it didn't look like it was completely through either. Seems the Pamidronate is definitely doing something. She is such a strong little girl, we had her on pain meds for a whole 3 days and then she was insistent and kept telling me 'mo more, mo more' every time I attempted to give her something for pain. She was standing in the back slab about 5 days after the fracture and we took it off 3 weeks after the fracture.
Emily has been on Pamidronate for nearly a year now and we seem to have gotten it down finally. Her wonderful pediatrician realizes that we are going to be doing this for years so has agreed to allow us to be booked in as day patients instead of having to stay over night. It makes such a difference. Emily sleeps through the night and so do we and she is no where near as apprehensive and grumpy. So neither are we. The staff at the hospital have come to understand us a little better and just leave us to go about our business, they don't even attempt to take blood pressure and let us do her temp when its required. Some days we can get it down to a flat 4 hours from arrival to departure (those are the best days).
Emily has just started standing all by herself and its so wonderful, she goes to a physiotherapist once a week and it has really helped with her balance and moving about a little safer. Emily is a bit weary of falling and going 'boom' which I mainly due to us being so afraid of her falling and being so protective. But I don't think that is a completely bad thing, I know we can be over protective but I would rather be that than have to see her in a cast more frequently. I might change my mind later about protecting her so much, but she is so small right now and doesn't understand so much.
We have started going to play school twice a week now, just for two hours in the afternoons. Emily seems to love it, she loves the company of the other children and although she can't do all the things that they do like climb up the slide. I try and let her have a little freedom. I want her to learn to share and how to interact with other children, when its just her and I she gets all the attention without having to share toys or time or anything. So when she gets to preschool that's all going to change and she won't get all that attention and then what ?? So weighing up the potential of a fracture at play school and the lessons she learns was a difficult one but I think we made the right choice for her.
Now me personally I am trying to put me back into my life. I had some how kind of disappeared along the way, I have become Emily's mom and a housewife and I forgot what I liked to do and wanted to do and that isn't good for anyone. I no longer had a real 'job' so what was I doing ?? So now I have started trusting our house keeper to look after Emily while she takes her nap for about 2 hours three times a week and I can go do what ever I want to do. I went to the gym once and I have also gone shopping (hey its early days still). But I feel like I am getting a bit of me back into my life. Now just to keep it up.
